内容摘要：A man who started growing food in his back garden to help people in need hopes to "inspire people to do the same".

A man who started growing food in his back garden to help people in need hopes to "inspire people to do the same".

"I just want him to inspire people."The mother of a six-year-old girl with a rare neurodegenerative disease has urged health bosses to "do the right thing" amid fears over the future of the medication she takes.

Flory, from Coventry, has, an incurable genetic disorder and Brineura is the only approved treatment that slows the condition's progress.Dozens of campaigners were in Westminster on Wednesday after being told NHS access to the drug was set to end in May.

Health officials claim "constructive" talks are being held over continued access to it but Flory's mother, Phoebe, said: "We absolutely cannot let this drug be taken away.""We need to do the right thing here, there are 40 children who are dependant on this treatment to survive, to live, for a quality of life."

The disease causes a rapid decline in a child's ability to walk, talk and see and is estimated to affect about 40 children in the UK with an average life expectancy of about 10 years.

Getting Brineura on the NHS had been "absolutely monumental" for Flory, according to Phoebe, who added she was still walking, climbing and eating due to the drug.The sale of industrial land in Wolverhampton to make way for hundreds of new homes has been approved by councillors.

Of the 524 homes that are planned for the Canalside South site in Heath Town, more than a fifth will be classed as affordable and in shared ownership.The development is proposed to be built on top of a planned Metro extension from Wolverhampton to New Cross Hospital.

But City of Wolverhampton Council cabinet members were informed that feasibility work to develop a rapid transit link from Wolverhampton Interchange to the hospital was ongoing.Transport for West Midlands (TfWM) told BBC News ahead of the meeting that the transport link was still being looked at.