She has been campaigning to get an amendment to the law that would force social media companies to give bereaved parents access to their child's data in the event of their death and this week met with government ministers to discuss the proposal.
"But she's been watching Joel on TikTok and she now thinks that Down's syndrome is really cool and as long as her brother will be as cool as Joel then that's brilliant."I was crying [when I got the message]. I was saying to my husband 'look at this message, how brilliant is that'. I'm just so glad that it has reached somebody and did good."
Joel was also touched by the message."It's amazing… TikTok's been an amazing thing," he says.Clare says she has also had to deal with a small number of hurtful comments.
Following a "really horrible comment" she posted a video in response.She said: "To that person and all the other people that didn't get enough love as a child, I'm going to prove on here that people with Down's syndrome can do absolutely anything...
"[Joel] certainly wouldn't say a nasty word about anybody, certainly not somebody he doesn't even know so I wish there were less people like you in the world and more people like Joel."
Recalling that post, Clare says she usually chooses to "ignore the negativity" but felt she had to speak out that day., which has been criticised by some Labour MPs.
Labour Mayor of London Sir Sadiq Khan said he understood the "context" in which the government had announced its new migration measures, but he would not have used the phrase "island of strangers" himself.Downing Street said Sir Keir stands by his words and "the argument he was making that migrants make a massive contribution to our country, but migration needs to be controlled".
An athlete has become the fastest and youngest man with an intellectual disability to complete a marathon.Angus Leckonby, who is autistic and lives with verbal dyspraxia, broke the two Guinness World Records during the London Marathon on Sunday.