"Typically, it is difficult to succeed in a judicial review challenging regulations," he told BBC News.
A golf day in memory of Jono has also been organised in May.Dr Steven Cox, chief executive of CRY, said: “It takes great courage and determination for anyone who has been affected by young sudden cardiac death to be able to see beyond their own situation and to want to raise funds for CRY and prevent other people from ever having to endure the same devastating grief as they have experienced."
A hospital specialist has invented a new product that manages to reduce plastic and simplify the process of testing urine.Consultant urologist Dr Nick Burns-Cox has been working on his own innovation, the Pee-In-Pot (PiP) for 10 years.Made from bamboo and sugar cane, it removes four items from the current urine collection process, three of them plastic.
Mr Burns-Cox, who works at Musgrove Park Hospital in Taunton, said he hoped it would cut down the use of single-use plastic in the NHS and reduce the chance of errors.The PiP is a two-compartment collection device which Mr Burns-Cox said will save health professionals time.
Previously in order to get urine into a 10ml collection tube for lab testing, patients were having to urinate into a sterile bowl where the urine was then syringed into a 30ml tube and sent to the lab where a technician had to pipette into into the correct 10ml tube.
Mr Burns-Cox said: "Not only was it wasting time, but it was wasting materials."They've either moved away, or sadly one died, and we've had a few injuries.
"We've gone down to very low numbers and you need a minimum number to be able to put on a decent show. We're struggling."Mr Ord, who has been with the group for 50 years, said at least half a dozen new members were needed to help its survival.
There are currently eight, but there were 20 in its prime.Mr Ord urged people to come and try out Morris dancing with friends.