内容摘要："No contract gives everybody exactly what they want but I am absolutely confident that for everybody - for patients, for dentists, for the NHS, for the government - this is a step forward."

"No contract gives everybody exactly what they want but I am absolutely confident that for everybody - for patients, for dentists, for the NHS, for the government - this is a step forward."

They are trying to crowdfund the renovation as well as equipment for Jack."Life is testing," admitted Nick.

"Amanda and I have to be realistic this could be his last Christmas, this could be his last birthday so really we're just trying to get this as comfortable as possible so Jack enjoys the time he does have with us.He said he and Amanda found strength in one another.Alongside all of this Amanda is continuing her search for other parents of children with Jack's condition.

"When we had our diagnosis we had nobody to turn to because there was nobody who had the same condition so there's no support groups available, there's nothing," said Amanda."If somebody in the future gets this diagnosis then perhaps they can find me, and I can offer a bit of support that I didn't have in the beginning because there were so many questions, so many what ifs, where, how, which were all just being met with 'we don't know'."

Over the past eight months Jack has been taken to hospital by air ambulance three times and the family have spent about 60 nights in hospital.

With the future so uncertain the family are making the most of every moment.Supporters remain confident it will eventually become law but it faces further parliamentary tests.

The bill is a private members' bill, sponsored by backbench Labour MP Kim Leadbeater.MPs have been given a free vote on it, meaning they can decide based on their conscience rather than having to follow a party line.

They have spent the past few months examining it in detail, with more than 500 amendments tabled.Some of these changes will be voted on by MPs next Friday - and a final Commons vote will take place in the summer, before it heads to the House of Lords for further scrutiny.